one again, my body is strugglingto get up & walk, lay down & sleep.to eat, digest & assimilate.instead, my stools … More
Tag: mapping my disability
my granddaughter, Covid19 and me
As a person at risk, here’s what my granddaughter, 7 years old, has designed for me. For the making of, … More
mapping my body, a quickie
the violence of recently smashing my face finding myself on the floor in the middle of the night was nothing … More
mapping my body, a quickie
trauma/PTSD is an unending flow where the spaces in between each episode of freaking out being numb or wishing to … More
et toi, energy lady, comment vas-tu?
– et toi, energy lady, comment vas-tu? – tu sors de ta grotte, je sors de la mienne, comme toujours … More
Mapping the last episode of my disability
I am so sick and tired to be sick. And even though chronic pain is rough, chronic infections are worst … More
The Art of Listening to the Most Marginalized …
For a marginalized person, being truly heard means becoming visible. For anyone whose voice has been silenced, distorted, or erased, … More
4 years of wearing a mask
this is what I looked like from 2003 to 2006, I had to wear a medical mask when leaving my … More
28 years of disability
This week I celebrated 28 years of being full time disabled, which meant not working anymore, spending more or less … More
what we need is a care economy
there are days when my whole being is just this aching heart from within and from without everything hurts, makes … More
a dangerous obliviousness
this morning, my shallow breath, my dark mood tell me, once again, how painful is obliviousness a harsh reminder of … More
what a mind blowing revelation!
sitting on the floor of the balcony as I face the sea behind the few houses scattered here and there … More
lullaby for darker times
to soothe my mind when he is upset my body when she feels assaulted both when they see the worst … More
a much needed conversation about non-avoidable burnout
After reading the first paragraph of the article entitled “Let’s talk about burnout” in the Lion’s Roar newsletter of September 9, … More
what do I need to say?
In the latest newsletter of On Being, we were ask the question What do I need to say? in the … More
this is how shitty I feel
How do you answer a question like, How are you? in a public space or within the little time most … More
Breaking Free
Can I stop for this day, this afternoon, or at the least this hour? Can I stop listening to the … More
the I without the We – sorry not for me
It has been said about me that I had no ambition that I would find any excuse to not become … More
depression, trauma : killers of empathy
Having suffered from depression for long periods earlier in my life, partly as a side effects of fibromyalgia, or chronic … More
who is listening?
As mindfulness is getting practice by more and more people, that all together we are learning to turn inward and … More